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The Spoons
by Nadine
Condon
Annie Bramlett
was the first person I ever saw as a hospice volunteer. Needless
to say, I was a nervous wreck. Would I know what to do? Would I
be enough? Would I run away in horror?
Driving to the high rise retirement community gave me second thoughts.
But after parking and going inside the lobby, my anxiety turned
to anticipation. What would this experience be like?
I
walked into the small studio apartment to find Annie resting in
the recliner. Since being diagnosed with terminal lung cancer, her
shortness of breath had gotten progressively more severe and she
could barely walk. She was also afflicted by matricular degeneration,
a particularly cruel blindness that robs you of all but your most
peripheral vision.
Expecting to find
an invalid, I was surprised when a gusty little old bird of a woman
greeted me warmly. Despite being unable to breath comfortably, and
almost sightless, she retained a healthy measure of self reliance.
She welcomed me heartily, perhaps too heartily. I sensed an air
of loneliness in that little room.
On the wall were
pictures of her family - her daughter, her son and her grandchildren.
She adored her grandchildren and lamented the fact they lived out
of state with her son. Her daughter lived near by, but they were
not close.
The only other
item on display in the apartment was a wall rack of specially designed,
enameled spoons that depicted tourist destinations...the Alps, China,
Grand Canyon, Florida, Paris, Roma
As her kids grew
up, and her situation as a divorced single Mom became more settled,
she started taking trips around the world with another friend. Cruises
and travel. Australia, Europe, the Caribbean. She regaled me with
wonderful stories of her adventures. Each spoon held a fond memory.
Despite her illness
and disabilities, Annie liked to get outside and do things. I quickly
became accustomed to loading her up in the wheelchair and wheeling
her downstairs and out the building for adventures.
We went out every
time I came to visit, which was weekly. Our downtown was just a
short distance from her door and was a lovely little community of
shops and restaurants. We would go to lunch in fancy restaurants
and plain. She was never really hungry, but simply enjoyed hearing
conversations, traffic, and the bustle of everyday life.
My favorite times
were when we wheeled through the downtown Park, which had beautiful
winding paths. The children's playground was a particular favorite
of hers. She could not see the children but she could hear their
squeals of delight. It made her very happy. Those were favorite
moments, sitting quietly together, in the park's safe embrace.
As life moved inexorably
on, Annie inevitably deteriorated. Her interest lessened in current
events, outside activities and food. When she would go to get her
hair styled, clumps would fall out during washing.
More importantly
though, she had gotten so weak that she began to worry about falling.
This fear was especially acute during the night, when Annie was
alone and had to go to the bathroom. She started to wake with severe
panic attacks and sometimes stayed awake all night, afraid and fretful.
She began discussing
alternatives for more comprehensive care. Her two alternatives were
either hiring a full time attendant and remaining in her apartment,
(with our care), or moving into a skilled nursing facility, (outside
of our care, at that time). For reasons unknown to me, she chose
to go into a skilled nursing facility, aka a nursing home.
I went to see
her, for what I clearly thought would be the last time in the apartment-
her home for seven years. We talked about her going into the nursing
home only elliptically. She said, "I wonder what will happen to
my spoons?" I wondered too, but was too naive and lacked the confidence
to know how to speak to that subject directly.
We gathered up
our things and went out to the Park. It was a picture postcard summer
day. We sat in the sun and absorbed it's healing warmth. I'll never
forget the sweet simplicity of sitting with her silently. For a
moment, there was no future and no past, just a perfect present.
We sat suspended in time, savoring the moment. I was sure this would
be the last time she would be in the Park. I wanted to infuse her
with all the memory, warmth, smells and sounds that it held. The
children's distant voices were a soft constant in the background.
The sun baked our faces. Flowers scented the air. The birds sang.
Neither of us
wanted to leave the bench where I had parked the wheelchair. Although
it remained unspoken, we both knew things would never be the same
again. She was making a significant transition in her life. It was
only with great mutual reluctance, that we finally headed back.
The next day,
she did move into a nursing home. One that had a very good reputation.
Good reputation or not, I was not prepared for what I encountered
when I went to see her. Although she had left our service, I wanted
to stay in touch with her. Many, many elderly people tied in wheelchairs
were just sitting in the hall, staring vacantly. It was disconcerting
and uncomfortable
I found Annie's
room. She had a huge bruise on her forehead. She had tried to get
out of bed during the night to use the bathroom. They had put the
rails up on her bed. She was not used to rails and tried to climb
over them and fell. She was now confined to bed and in diapers.
She had never worn diapers before. She was embarrassed.
Although she
expressed a desire to go home, I knew that was impossible. So I
just sat with her awhile, absorbing the sights, sounds, smells of
the nursing home and trying to put a positive spin on the situation.
I joked and held her hand. I told her things would get better. I
told her things would be okay. I didn't feel so positive inside,
but what was I to say?
I once found
Annie out in the hall, tied to a wheelchair, all but unrecognizable.
She had been given her morning shower and parked out in the hall,
while they continued on with the other patients. Her hair, still
damp, hung lankly along her down turned face. She looked utterly
defeated to me in that moment.
Finally one day,
I stopped in and found her very tired and distracted. She was wrapped
up tight in her sheets, mummy-like. She didn't want anything. She
really didn't want to visit. I stroked her brow and told her I loved
her and was thinking of her. She was surprisingly forceful when
she said to me, "Don't worry about a thing, Dear. Don't worry. Just
don't worry." I had the strangest feeling that she was blessing
me.
Several days
later, I stopped in again. The bed was empty and made up. I saw
the daughter of the women in the next bed.
"Didn't they
tell you? She died two days ago. She had a terrible time at the
end, but went quickly. I told them to call her family, but nobody
came."
When you think
about people dying and their lives being extinguished, many assume
that you don't want to be there to see it or witness it. But personally
I would have liked to have been there with her. I was sorry she
died alone. She meant a lot to me. It was my first hospice loss.
There was no
funeral or service and I never saw the spoons again. I had very
little closure except the fact that we had shared life. And in the
end, that has proved to be enough for me.
I've discovered
now, that no matter how brief, it is these glimpses into someone's
life that honors the living. This is the living testament.
When we are called to be witness, I think this is the witness the
Bible is talking about. Witnessing a life.
It's been more
reassuring more than depressing. Choice is freedom. We can all make
a choice to be kinder. Annie Bramlett is someone I'll never forget.
She was my first real kindness. She was very kind to me.
Nadine
Condon is a music business mentor and counselor, author and
speaker, and a regular contributor to Grace Online. She has been
a volunteer with Mission Hospice of San Mateo County since 1999.
Related
Links
Caring to the End
Our panelists explore their call to caregiving, and what it is that
they gain from a relationship with the dying. Forum.
Graceful Passages: A Companion for Living and Dying
Read a review of the CD, Graceful Passages: A Companion for Living
and Dying. Featuring the music of Emmy award winning composer Gary
Remel Malkin and produced with Michael Stillwater, this special
set includes spiritual messages from Alan Jones, Ram Dass, Thich
Nhat Hanh, and others. CD Review.
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